A couple weeks back I was lucky enough to photograph a great event in Burlington for Robbies Rainbow. For those of you that don’t know Robbies Rainbow is a children’s charity that helps kids living with Crohns and Colitis access expensive drug treatments not covered by private or government health plans.
As most of you are aware Crohns is the disease that I was diagnosed with when I was 18. I remember what it was like to be a kid and have constant pain in my stomach as well as my joints and it was not fun in the least. I also remember people teasing me about faking being sick because I didn’t look sick. Well that was until I got really really sick. Thank God for my college room mate. She was the one who went to all the appointments in Ottawa with me. She was the one that explained to my college professors and classmates. She is the one who made sure I got the rest I needed. It wasn’t easy being away from home and going through these things as my parents were worried and non of us really understood what the disease was. We still laugh about the early years when my dad advised me instead of marring for money to just marry for a good health plan. I’m lucky to have found a man who loved me and cared for me and also has a good health plan.
While at the Hope Floats Gala for Robbies Rainbow I got the chance to listen to Taylor speak about living her life with Crohn’s and Colitis. The things that she spoke about bought back so many memories. At one point she bought tears to my eyes when she talked about speaking with her mom. I remember those conversations with my mom and dad. I was so moved by her speech that I asked her to record and send it to me so that I could share it as well. Please make sure to watch the video at the bottom of this post as it’ll give you a better understanding of what Crohns and Colitis patients live with on a daily basis.